January 26, 2014

National Kawasaki Disease Awareness Day

Today is the 4th annual National Kawasaki Disease Awareness Day.



My oldest son Lucas is a Kawasaki Disease Survivor. He was sick for 22 days before he was diagnosed with Kawasaki Disease and then spent his 5th birthday in the hospital getting treatment.

Thankfully he is doing well 5 months later. But there are some children who aren't as lucky. Kawasaki Disease is really hard to diagnose and we need to get together and do something about it.

Visit the Kawasaki Disease Foundation website to learn more about this disease.

You can read our journey with this disease by visiting the Kawasaki Disease Tag.

Read about this disease and know the signs. As parents we have an obligation to question our doctor if our kids aren't better in a few days. Time is of the essence with Kawasaki Disease it's one of the leading causes of childhood heart disease.

Lucas didn't show all the symptoms at the same time. He had many doctor's visits and two ER visits all misdiagnosed for another virus. One of the doctor's at our first visit had mentioned Kawasaki Disease but he never thought he had it, because he didn't show all the signs at once. We should have pushed for a heart echo.

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2 comments:

  1. Just came across your blog tonight... I am so sorry for all you've been through. 2013 was marked by Kawasaki Disease for us as well. Really hard stuff. Thinking of you. Claire x
    clarinascontemplation.blogspot.co.uk

    ReplyDelete
  2. Just came across your blog tonight... I am so sorry for all you've been through. 2013 was marked by Kawasaki Disease for us as well. Really hard stuff. Thinking of you. Claire x
    clarinascontemplations.blogspot.co.uk

    ReplyDelete

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